XTandi, continued

The list of side effects from Xtandi keeps growing. 

My sense of smell and taste has been affected. My oncologist verified this and had a term for a change in tastes due to cancer meds. 

I used to like Dunkin' Donuts Coffee. I tried it in a couple of locations and it all tastes the same - blah! I tried Starbuck's and it tastes funny too. I guess I'll be a tea drinker for the time being (I couldn't tell you what good tea tastes like). 

I also have these periods of fatigue that seem to come and go. Sometimes I'll take a nap, sometimes I don't have time and that fatigue goes away. My oncologist calls it a "cancer fog".  

I am also on Lupron and that gave me hot flashes but I didn't notice any worsening of this side effect. In fact it seem to have subsided a bit. 

The latest side effect is very odd. If I sit for a while and then try to get up, I get a pain in my thigh (about a five on a scale of one to ten) and a feeling of weakness in that leg. If I walk around a bit the pain and sense of weakness goes away. This has been going on for about a week.  

This is kind of disheartening because my back stiffness, thigh numbness, and incontinence all seem to be improving (though slowly) and then I get another physical ailment. I was a little bummed out yesterday but I'm back on the optimism horse again today. I realize that some people have it so much worse. Plus as with the hot flashes, maybe this pain will be short lived.  

If I'm lucky, I'll be on Xtandi for 2 to 4 years before it stops working. Then it'll be on to another drug? I'm hoping that they'll have immunotherapy working for prostate cancer by then.